New book details one Philly mom's battle against health care system to save daughter's life

Five years after suing the government, Janet and Sarah Murnaghan have written a book about their ordeal called, "Saving Sarah."

Hadas Kuznits
September 05, 2018 - 3:16 pm

PHILADELPHIA (KYW Newsradio) -- The ordeal of a girl being treated at Children's Hospital of Philadelphia whose family fought to change juvenile restrictions on organ donations has been memorialized in a book. 

Janet Murnaghan, co-author of Saving Sarah, says when it became clear that the only way to have a chance at getting a proper lung transplant for her daughter Sarah was to sue the government, she did it.

Janet Murnaghan and her daughter Sarah.
Holli Stephens | KYW Newsradio

"Sarah was 10 years old at the time and had been waiting for a lung transplant for a year and a half when we learned that government regulations restricting access to organs for kids under 12 were part of the reason she had been waiting so long," Murnaghan said.

Meanwhile, Sarah's health was deteriorating.

"It was mostly just thinking about getting my transplant, getting out of the hospital," Sarah said. "I didn't really know anything about the lawsuit."

Janet says the lawsuit was won at the eleventh hour and Sarah received her transplant less than a week after that victory.

"It was my sister, who, and I often look back at that moment, where she did all that research and she came to me and she said, 'we can sit here and we can comfort here and we can support her until she dies or you can go out swinging.'"